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| This page is dedicated to all members of the Menieres Disease Support Group's mailing list. Anyone who is subscribed to that list may send me their picture along with a brief bio. Please give short answers to the questions you see on this page only. If you have any suggestions or want to add your picture and bio, e-mail me at menieres@maine.rr.com Everyone is listed in alphabetical order, by first name. | ||
| TOPIC OF THE WEEK | ||
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REAL NAME: Barbara Pinzka |
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NICK NAME: Barbara P. |
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E-MAIL: bpinzka@partnersmc.com |
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WHERE ARE YOU FROM?: Cincinnati, Ohio, USA (born in Princeton, New Jersey) |
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TIME WITH MENIERES?: Approx. 20 years |
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WHAT HAS HELPED?: Shunt surgery, medication, spiritual meditation and rest |
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REAL NAME: Barbara Reichardt |
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NICK NAME: Barb R. |
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E-MAIL: barbbob@bcinternet.net |
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WHERE ARE YOU FROM?: 108 Mile Ranch British Columbia, Canada |
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TIME WITH MENIERES?: Have had symptoms of Menieres from the age of 13 after I had the mumps, so that makes it 47 yrs. Diagnosed 14yrs ago. |
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WHAT HAS HELPED?: I struggle with this disease every day. I try to eliminate stress whenever possible, have a good Family Doctor and for medication take Ativan and Serc. Without these meds, I could not function. |
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REAL NAME: Bill Day |
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NICK NAME: Bill Day |
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E-MAIL: BDay357@cs.com |
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WHERE ARE YOU FROM?: Hotchkiss, CO (Originally from Columbia, KY) |
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TIME WITH MENIERES?: since March, '97 |
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WHAT HAS HELPED?: Serc. And avoiding wind and visual triggers. |
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REAL NAME: Bob Wallace |
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NICK NAME: Bob W. |
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E-MAIL: rew111@aol.com |
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WHERE ARE YOU FROM?: Columbus Ohio USA |
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TIME WITH MENIERES?: 27 years |
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WHAT HAS HELPED?: Treating my allergies with Zyrtec has lessened the symptoms. |
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REAL NAME: Chester Gunther |
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NICK NAME: Chet |
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E-MAIL: chet6499@earthlink.net |
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WHERE ARE YOU FROM?: Greene, NY USA |
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TIME WITH MENIERES?: Approx. 6 years |
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WHAT HAS HELPED?: Positive attitude, determination, medication, rest. |
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REAL NAME: Christopher Spaulding |
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NICK NAME: Spaulds |
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E-MAIL: menieres@maine.rr.com |
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WHERE ARE YOU FROM?: Westbrook, Maine USA |
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TIME WITH MENIERES?: February 1999 |
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WHAT HAS HELPED?: Nothing yet. |
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REAL NAME: Cynthia Hedberg |
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NICK NAME: Cindie |
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E-MAIL: Cindierela@aol.com |
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WHERE ARE YOU FROM?: Cincinnati, Ohio USA |
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TIME WITH MENIERES?: at least 3 yrs just got dx in Aug. 1999 |
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WHAT HAS HELPED?: Meclizine, diuretics, low sodium diet, support groups |
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REAL NAME: Connie Ferraro |
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NICK NAME: |
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E-MAIL: ferraro@anv.net |
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WHERE ARE YOU FROM?: Boulder City, NV USA |
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TIME WITH MENIERES?: About 30 years |
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WHAT HAS HELPED?: Not working anymore, less stress, valium as needed, exercise and rest. |
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REAL NAME: |
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NICK NAME: Cynthia |
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E-MAIL: cynguil@earthlink.net |
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WHERE ARE YOU FROM?: Arizona USA |
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TIME WITH MENIERES?: 5 years |
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WHAT HAS HELPED?: Stopping work, less stress, medications, low sodium diet, becoming informed, and communicating with others who have Menieres. |
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REAL NAME: Dakota Evans |
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NICK NAME: Dak |
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E-MAIL: |
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WHERE ARE YOU FROM?: Ontario, CANADA |
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TIME WITH MENIERES?: 9 years Dx'd: July 97 |
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WHAT HAS HELPED?: Serc (at one point), no stress and lots 'o' lorazepam :^) |
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REAL NAME: Dee Tarango |
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NICK NAME: Dee |
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E-MAIL: evndet@AOL.com |
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WHERE ARE YOU FROM?: Moreno Valley, CA USA |
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TIME WITH MENIERES?: About 3-4 years, dx 2 years ago. |
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WHAT HAS HELPED?: Low Sodium diet, no caffiene, chocolate, lots of rest, reduce stress, knowing what will trigger a problem and taking one day at a time. |
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REAL NAME: Harvey & Debbie Kliman |
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NICK NAME: Deb, db, 'arvey, klide |
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E-MAIL: dskliman@aol.com |
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WHERE ARE YOU FROM?: Chadds Ford, PA, USA (Deb, born in Hamilton, NY - upstate near Syracuse |
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TIME WITH MENIERES?: Deb, Approx. 2 years |
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WHAT HAS HELPED?: Diet, Valium, not much else. |
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REAL NAME: Jacki Binkley |
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NICK NAME: Dizzyjake |
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E-MAIL: dbinkley@sk.sympatico.ca |
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WHERE ARE YOU FROM?: Saskatchewan, Canada |
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TIME WITH MENIERES?: 3 years |
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WHAT HAS HELPED?: Serc and Valium, but still have drop attacks and daily dizzy spells, surgery is out for me because I still have my hearing. |
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REAL NAME: Jan & Johnny |
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NICK NAME: |
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E-MAIL: |
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WHERE ARE YOU FROM?: |
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| TIME WITH MENIERES?: |
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| WHAT HAS HELPED?: |
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REAL NAME: Jessie Sheppard |
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NICK NAME: |
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E-MAIL: sheppard@telepath.com. |
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WHERE ARE YOU FROM?: Born in Pa, raised in Ohio, Lived in Ok off and on since 1971. |
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TIME WITH MENIERES?: MM since 1987, both ears. |
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WHAT HAS HELPED?: Low salt diet, no stress, and lots of rest. |
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REAL NAME: |
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NICK NAME: Jim C. |
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E-MAIL: |
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WHERE ARE YOU FROM?: Warrenton, VA, USA |
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TIME WITH MENIERES?: Since 1989 (diagnosis unclear) |
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WHAT HAS HELPED?: Chocolate, cycling, being outdoors, and being active. |
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REAL NAME: Joel Perlish |
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NICK NAME: Sorry to say, never had one. if anyone wants to think of one for me I'd be very appreciative. Maybe. |
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E-MAIL:jperlish@aol.com WEB SITE: http://members.aol.com/joelkate |
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WHERE ARE YOU FROM?: Havertown,PA (SW Philadelphia,PA,USA) |
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TIME WITH MENIERES?: About 5 years |
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WHAT HAS HELPED?: Exercise, diet, no medication, rest, positive attitude. Click on my picture to read my story! |
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REAL NAME: John Raley |
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NICK NAME: |
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E-MAIL: jraley@connect.net |
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WHERE ARE YOU FROM?: Plano (Dallas), Texas USA) |
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TIME WITH MENIERES?: Since 1993 |
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WHAT HAS HELPED?: Nothing definitively. Low sodium does not appear to help, so I don't torture myself with it. |
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REAL NAME: Kathy antis |
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NICK NAME: |
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E-MAIL: |
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WHERE ARE YOU FROM?: Pennsylvania, USA |
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TIME WITH MENIERES?: I've been experiencing symptoms for 15 years |
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WHAT HAS HELPED?: Serc has helped me a lot |
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REAL NAME: Leesa |
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NICK NAME: |
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E-MAIL: Leesa313@aol.com |
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WHERE ARE YOU FROM?: West Hills, Ca (San Fernando Valley) USA |
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TIME WITH MENIERES?: May 1975 1 month before graduating High School - it definitely put a cramp in my plans for after high school. | ||
WHAT HAS HELPED?: Valium helps when the attacks are unbearable. I take things one day at a time, sometimes one minute at a time. The wonderful support of friends and family help a great deal. The guy in the pic with me is my husband of almost 20 years, Barry, he has been nothing but supportive and understanding. |
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REAL NAME: Lise Edwards |
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NICK NAME: Lise |
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E-MAIL: lise@bc.sympatico.ca |
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WHERE ARE YOU FROM?: Ucluelet B.C Canada (born in Copenhagen, Denmark) |
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TIME WITH MENIERES?: 13 Years |
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WHAT HAS HELPED?: SERC and time I think. |
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REAL NAME: Malcolm Drury |
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NICK NAME: Dr. Wonderful (well, that's what I call myself) |
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E-MAIL: mdrury@nrn1.nrcan.gc.ca |
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WHERE ARE YOU FROM?: From Ottawa, Ontario (born in UK) |
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TIME WITH MENIERES?: approx 18 years (started as cochlear hydrops) |
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WHAT HAS HELPED?: Hard to tell sodium, alcohol etc. seem to have no effect. |
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REAL NAME: Millie Brown |
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NICK NAME: Millie |
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E-MAIL: Lady1247@aol.com |
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WHERE ARE YOU FROM?: Lancaster County, PA. USA |
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TIME WITH MENIERES?: |
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WHAT HAS HELPED?: Less stress, low salt, no caffeine, and meditation have helped a little. |
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REAL NAME: Molly Parks |
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NICK NAME:Molly |
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E-MAIL: molly1@primenet.com |
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WHERE ARE YOU FROM?: Whetstone, Arizona, transplanted from Iowa USA |
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TIME WITH MENIERES?: |
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WHAT HAS HELPED?: Endolymphatic sac decompression, right ear. Same with addition of mastoid shunt, left ear. Lessening stress, my faith. |
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REAL NAME: Pat Meadows |
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NICK NAME: |
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E-MAIL: pat@meadows.pair.com |
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WHERE ARE YOU FROM?: USA |
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TIME WITH MENIERES?: |
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WHAT HAS HELPED?: |
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REAL NAME: Raymond |
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NICK NAME:Ray |
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E-MAIL: rwanieck@brazosport.cc.tx.us |
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WHERE ARE YOU FROM?: Lake Jackson, Tx - about 50 miles south of Houston USA |
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TIME WITH MENIERES?: Since 1988 |
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WHAT HAS HELPED?: Cut out caffine and nicotine, diet, exercise |
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REAL NAME: Sandi Allen |
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NICK NAME: |
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E-MAIL: |
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WHERE ARE YOU FROM?: Georgia USA |
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TIME WITH MENIERES?: 2.5 years - No dx |
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WHAT HAS HELPED?: Nothing seems to make a difference, so...I don't fight it; I deal with it! |
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REAL NAME: Stephanie Calder |
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NICK NAME: Steph, Seemph |
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E-MAIL: |
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WHERE ARE YOU FROM?: Wellington, New Zealand |
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TIME WITH MENIERES?: had symptoms since I was a very young child, dx two years. |
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WHAT HAS HELPED?: SERC, holidays at the beach. |
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REAL NAME: Sylvia Pesl |
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NICK NAME: Syl |
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E-MAIL: |
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WHERE ARE YOU FROM?: Lido Bay, CA., originally. Now in Houston, Texas area. |
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TIME WITH MENIERES?: 10 years |
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WHAT HAS HELPED?: 2 shunt surgeries, valium, low salt, stress and relaxing techniques. And this MDSG Group has been wonderfully informative. |
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REAL NAME: Ylla Renfro |
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NICK NAME:Ylla |
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E-MAIL: ylla@az.com |
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WHERE ARE YOU FROM?: Bellingham, WA USA |
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TIME WITH MENIERES?: 22 years |
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WHAT HAS HELPED?: Getting out of a high stress job, adequate rest, meditation, support. |
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