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WE ARE VERY PROUD OF OUR AWARDS
RSDVICTIMS CO- OWNER, ANDY AND HIS SON KENNY
Andy and Kenny Rutter presented with an award for self sufficiency. April 17th, 2002
We are so very proud of you both.
I know this is not readable
but it appeared in our local paper in 1997 a year after I was diagnosed with RSD, they did an article on my husband and myself. Ducky
Presented to Ducky by members of the RSDVictims who nominated her for this award. June 2002
Pastor Lyle recieved his award for his undying compassion and love to the RSD Community. It was awarded in November 2002.
Evelyn recieved her RSDHero award for her unrelenting work to raise awareness, education and just "being a great friend" to other RSDers.
We are very proud of you!!!!!!!!
August 2003
This appeared in the Fremont Paper in Fremont, Nebraska
Connie Henderson, one of our members persisted in raising awareness.
Suffering from disease, Fremonter seeks more support
By Janet Nitsick/Tribune Staff
One day last November, Connie Henderson noticed her left leg had
started to swell and was extremely tender.
By December, she could hardly put any weight on it and it hurt just
to touch her leg, ankle and foot.
The doctors had no answers at first, the Fremont woman said, until
she went to a podiatrist because she could no longer put on her shoe.
He diagnosed her with Reflex Sympathetic Dystrophy Syndrome.
It's a disease that may be unfamiliar to many people, but it's one
Henderson and millions of other Americans live with daily.
That's why Henderson is trying to organize a local support group for
those who suffer with RSD. A room is available at the Fremont Area
Medical Center, Henderson said, if she could find six to 12
interested people.
RSD is a progressive disease in the autonomic nervous system. The
syndrome can follow a trauma such as a bullet or knife wound, a break
or fracture — especially to the wrist or ankle — heart problems,
infections, surgery and spinal injuries. Or, in 30 percent of the
cases — as in Henderson's case — it can form on its own, according to
information she provided.
As of 2001, there were 42,565 people diagnosed with RSD, Henderson
said. It is estimated that between 1.5 million to 6 million people
suffer from it, which is more than those with AIDS, HIV, multiple
sclerosis or breast cancer combined, she said. It was first
documented during the Civil War.
Those who suffer with RSD experience severe pain and there is a high
suicide rate associated with the syndrome, Henderson said.
"There is no cure for the disease at this present time," Henderson
said.
Henderson said she has found online support, which has helped her
talk with other sufferers and has helped her obtain more information
about it. But there is no support group in Nebraska, she added.
"A lot of times people have been told (the pain) is in their heads
and it is not real. I want it stopped because it is a pain that is
very, very real," Henderson said.
Henderson is all too familiar with that pain because there are days
she can barely move. After using a cane for a while, she now uses a
walker for assistance. Her husband, Tommy, even has to put on her
shoes, she said.
The disease also has affected her balance, which has made her unable
to work as a convenience store manager since May, Henderson said.
In May, a permanent spinal-cord stimulator was installed to regulate
the pain, she said, adding that since then she has had reoccurring
symptoms in both arms — significantly in her left arm — but not the
full-blown pain.
Getting a diagnosis is a problem, Henderson said, noting many doctors
are not taught about the disease in medical schools.
The disease often will go away for a while and then come back more
severely, Henderson said. She should know, because she had dealt with
a bout of RSD in 1998.
That time, she had pain from her mid-forearm to her fingers. Several
procedures were performed, but after surgery was performed on a
nerve, the disease went into remission.
"What I am trying to prevent, with the support group, is somebody
(going) a long period of time without being diagnosed," she said.
Anyone interested in joining the RSD support group should call
Connie Henderson at 753-3054.
Copyright © 2003 Fremont Tribune
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